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A symptom list: Myalgic Encephalomyelitis

Myalgic Encephalomyelitis (ME) is a debilitating acquired neurological condition which has been recognised by the World Wellness Organisation (WHO) considering that 1969 as a distinct natural neurological disorder with the code G.93.3. Myalgic Encephalomyelitis symptoms are manifested by virtually all bodily systems including: cognitive, cardiac, cardiovascular, immunological, endocrinological, respiratory, hormonal, gastrointestinal and musculo-skeletal dysfunctions and harm. ME is a neurological illness of extraordinarily incapacitating dimensions that affects practically each bodily system — not a difficulty of medically unexplained ‘chronic fatigue.’ Numerous with ME are housebound or bedbound. Individuals with ME would give something to as an alternative only be severely ‘fatigued’ or tired all the time. For more info, and to see a total symptom list for ME (available in Word or PDF format), see: www.ahummingbirdsguide.com Also note that it must not be assumed that because you may possibly have some percentage of the signs and symptoms on the list that you necessarily have ME – a lot of of them are frequent in a range of other illnesses and it is the pattern of signs (and the acute onset form) which enables a ME diagnosis to be produced, as effectively as the presence of a amount of core characteristics and signs (and check outcomes) which are constantly present in the illness, and with no which a diagnosis of ME should by no means be manufactured. (For illustration, injury to the brain, the CNS, which is visible on brain scans, and the unique

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Comments (17)

 

  1. cloudbustingstar says:

    Thanks for getting back ,name Metronidazole to treat infection.after 3 days on this drug l ended up in hospital.and no one could find out what was up with me. 2years later it was said. i have m.e l will look for book…if i keep off all drugs. artifical colours
    flavovrs and caffene .and drinks and i love a glass wine. I can get thougth the days

  2. AHummingbirdsGuide says:

    @cloudbustingstar Thanks yourself, for writing:) What pill did your Dr give you that made you ill? I’d also highly recommend you read everything you can by Dr Hyde…you will cry, probably (as I did) to read such accurate accounts of M.E. It really helps, to have good info!

  3. cloudbustingstar says:

    This was so ture, l have had this suffering disease for 6 years. and it s the first time someone has list all the symptoms. l was very ill after takeing pill, my doc give me .
    just like to say thanks

  4. AHummingbirdsGuide says:

    @mahmoods Me too, I would love to work and pay tax and be able to do all those normal things. If we could, we would! I’m so sorry you feel so desperate…there are no easy solutions, but talking to others in the same (hideous, leaking) boat can really help. Do you have any support? If not, please consider joining one of the HFME groups…things can improve, there is still real hope esp. as you have not been ill so long as some… Hang in there…

  5. mahmoods says:

    After suffering for 7 yrs plus,I was only diagnosed 2 yrs ago.My condition continues to deterioate.Now with the goverment shake up and medical assesements by ATOS for the DWP,they are trying to say I am fit to work.Why dont they do the research about this ghastly condition.Its a life changing condition with no treatment for it.I am no where near the same person as I was 8 yrs ago.I would love to be normal and go back to work,I just cant.I dont feel I can go on and dont have the energy to fight.

  6. AHummingbirdsGuide says:

    @ralphinio4 Yes, if you had M.E. you wouldn’t be able to exercise intensely and you would describe the disease and main symptoms very differently. So it is absolutely NOT M.E. I am no doctor, but that much is clear, as to what you do have I couldn’t possibly say, as it could be more than a hundred different things. Wish you all the best in finding a good Dr that is a skilled diagnostician….and soon!

  7. ralphinio4 says:

    I’m not sure if I have this or not. I am able to exercise, often intensely. Would this be impossible if I had Me? My symptoms seem to be detachment, difficulty focusing and fatigue. If anyone has any advice, I’d be very grateful!

  8. FreeBritain1 says:

    @charmedjoey I find I need to push forward sometimes and this can be very painful. Then I need to pull back to a comfortable place and stay there for a year or two. Lots of love to you in your courage. Anne

  9. FallaciesDetective says:

    very interesting! what do you think makes the viruses cause the disease in some people? I guess genetic and stress factors are possible- or something we just don´t think of yet. I am sure it is not a psychological reason, even though a stressed soul does not make things easier.

  10. icaleod says:

    Great vid! I really appreciate the thoroughness of this video.

  11. redshift919 says:

    Thank you for this wonderful video! I suffer from Fibro, CFIDS, and possibly M/E. I finally had several sleep studies, and discovered that I have Central Sleep Apnea and Disordered Sleep — basically I have sleep deprived for over 3 years! This of course affects my memory and mood.

    Please get these studies as there are some wonderful opportunities for repairing your sleep. It saved me from a slow death.

    God Bless.

  12. FreeBritain1 says:

    Wow, this is truly amazing. So very well done to you. Spot on!

    Many, many thanks and God bless X

    (See my page re the campaign to protect the disabled and chronically ill. Very important for all! Please sign the petition, via the link supplied.)

  13. AHummingbirdsGuide says:

    Best of luck with your parents! I agree, you learn every day what you limits are with this disease, you know them inside out, absolutely.

    I’m sure you know standing more tahn you should, when it’s ME, can be far far more serious than mere dizziness and so on…if you do it too much, can severely disable or even kill…sigh. I hope so much you can get a job within your limits!

  14. charmedjoey says:

    listen. They tell me I don’t know my limits because I haven’t tried. After living with an illness for years, you pretty much know your own limits, right? Plus, I have trouble standing in a que in a shop – never mind standing at a check-out for hours being a cashier (or a job like this).

    However, I know I’m very, very lucky to be where I am, and to have improved to get to this point, instead of being housebound like I was some years ago and like many M.E. sufferers are.

    Thanks for the video.

  15. charmedjoey says:

    and I seem to have a lot of problems with memory loss, as well as understanding work which I know I should be able to understand, talking normally (as in getting my words out and making sense verbally of what’s in my head), and concentration.

    Physically, I’m currently very worried about the fatigue and dizziness I still experience when on my feet, especially when stood still, because my parents are really getting at me to find a job. I know I need one involving sitting down, but they won’t

  16. heiwalove says:

    this video is well-done. again, i recognize everything you speak of here, know it well as my own experience; and i was on the very severe end of illness, both neurological and physical.

    i hope you find reprieve.

  17. Timebandit720 says:

    Only thing I’ve found so far that helps is NADH, from most health food shops. It costs about £20 for a months supply, but it does help give you a bit more energy. I’d say it gives an inprovement of about 10%.

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